Its UCSF!

What a roller coaster of a week. On Sunday, Barry got up from a nap and the got dizzy, fainted, fell and hurt his back and we couldn't get him up. So 911 was called and the ambulance took him to Kaiser where they said he was severely dehydrated and gave him 4 liters of normal saline. Holy cow. Then we found out that Kaiser denied him going to Sioux City Iowa for the trial and that got me mad. So I filed a grievance with Kaiser, told them to escalate it and get him on this trial NOW. That was the only place that they had drug and a spot for him. THEN yesterday we got a phone call from the dr. at UCSF who said...."I think we have a spot for the trial". Today we found out Kaiser approved our travel to Iowa and we had an appt. on Tuesday for him to start the screening process. Great news!! However I was trying to figure out how I was gonna take a family medical leave, how to pay bills, who would be in charge of our house and animals, etc.....THEN at the end of today, we found out that UCSF had a spot and we had an appointment on Monday for him to start the screening process. HOORAY!! and YAY GOD!! I would have gone anywhere and done anything to have my husband start this drug, but this is SOOO incredible!! I wanted to fall to my knees at work and weep, but had to stay professional. Wow. God is awesome. However......Barry has pneumonia we found out. There was a small spot on his lung that the ER missed when he went in Sunday night/Monday morning. So we have him started on antibiotics so he can be well enough for the trial whenever it actually begins. I talked with the UCSF doctor and asked if he had the drugs in hand....he does not, but assured me they were forthcoming. He had spoken with the drug company, and said they should be on their way in the next week or so. Please my friends....pray that the pneumonia will go away quickly, that this drug .....will WORK and WORK FAST!!! I have to say, if you are a squeaky wheel at kaiser you can get what you ask for and the co-ordinator at our Kaiser is amazing. I am gonna give her a dozen roses for all the paperwork and hoops she had to jump thru to help us....and she helped us a lot. Thank you to all who prayed.....but its not over yet. Our journey is still going onward, but we keep our eyes on God and trust Him who provides all things for us. And He is AWESOME! Soli Deo Gloria!!