Friday, March 12, 2010

Interferon....complete!

My husband simply amazes me. As ill has he was during his interferon treatments (stomach issues, chills, fever, no appetite, 15lb weight loss that he could not afford to lose, incredible fatigue etc) he has already gone back to work part time, two days after his last treatment. He is struggling so hard to get his life back. And its such an amazing blessing for me to have my husband back. When I come home from work, he is not thrashing around in bed with earth shattering chills, he is on the couch and able to talk coherently and watch some TV with me and actually eat a meal and almost enjoy it. It was so weird having to force my husband to eat and when he did eat, it was the bare minimum of bites before he had to go lie down or get sick to his stomach. We had our UCSF appointment and did not discover anything new, other that, if , God forbid, he DOES have stage IV disease there is a specific brand new, phase one clinical trial he may be able to get on, IF he has a specific gene that he needs to be tested for. It will cost $$$ to get this tested thru UCSF, and we are checking to see if Kaiser does genetic testing for this. I can't look too far ahead or my head starts to spin on the "what ifs" of this disease. I am learning to take just one day at a time, to enjoy my husband every single day and enjoy the incredible blessing of being "normal"...how ever long or brief it may be.

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