Wednesday, July 7, 2010

Good news?? Maybe? Please?

So once again we play the waiting game. Barry has a CT scan scheduled for the 19th of July. Our anniversary (34 years) is coming up next week and we have the CT scan after that. We are trying to find a quiet place to go for a couple of days on our anniversary just to get away and deal with some stuff. But I want some good news for a change. I'm so terrified of getting more bad news from this next CT scan. He's had 2 rounds of DTIC chemo and we're hoping that is doing SOME sort of good. If not, we at least have an option to get him on the new drug (PLX4032) that may have a trial opening soon at UCSF. Barry has been so so tired ....very fatigued after the chemo, for 10 days or more. He's trying so hard to be better. But the Doctor actually told him to EAT EAT EAT. Barry's been trying to eat the Raw Foods diet because so many people have said its healthy for him. However, he doesn't like it and since he didn't like most of the food and was afraid to eat anything else that may "help" the cancer along, he just stopped eating. He lost 25 lbs. The doctors said "enough!!". So he is back eating the food he loves with the addition of healthy fruits and vegetables. We had a great 4th of July weekend going to 2 parties and a wedding. He was exhausted after all of that, but God love him....he did it. So....once again....we play the waiting game. And we pray. Please God....good news. For once....good news.

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